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South African Journal of Physiotherapy

versión On-line ISSN 2410-8219
versión impresa ISSN 0379-6175

SAJPHYS vol.80 no.1 Cape Town  2024

http://dx.doi.org/10.4102/sajp.v80i1.1978 

STATE OF THE ART

 

Supported self-management in long-term conditions in an African context

 

 

Leigh HaleI; Amanda WilkinsonI; Sonti PilusaII; Aimee StewartII

IDepartment of Physiotherapy, Faculty of Health Sciences, University of Otago, Dunedin, New Zealand
IIDepartment of Physiotherapy, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa

Correspondence

 

 


ABSTRACT

Self-management is an important strategy to improve quality of life, appropriately manage long-term health conditions, and reduce the economic burden of long-term health conditions. However, equitable healthcare access remains an issue, and the focus on 'self' in self-management is problematic. Our review aims to explore the conceptualisation and evolution of supported self-management in an African context and its relevance to physiotherapy. A state-of-the-art review of the literature was undertaken by the authors. The authors knowledge of the subject area and a database search retrieved recent articles exploring patients' and healthcare providers' understanding of supported self-management in Africa. Relevant articles were read, and data summaries of included studies were extracted and tabulated. Findings were organised deductively. Sixteen studies, 11 primary research, and 5 reviews (2016-2023) undertaken in a variety of sub-Saharan countries with healthcare workers (~n = 177) and people (~n = 16 115) living with a mix of non-communicable and communicable conditions were considered in this state-of-the-art review. Self-management perceptions were drawn from Western authors spanning development research and understanding of the concepts in Western thinking. We conclude that imported concepts, such as supported self-management for long-term conditions, should be considered within local health delivery solutions. These should be embedded in an understanding of traditional African health systems.
CLINICAL IMPLICATIONS: There is a need to develop locally derived African solutions. Self-management strategies for long-term health conditions should be developed, considering traditional holistic African health systems

Keywords: Africa; disability; healthcare providers; long-term health conditions; patients; perspectives; state of the art review; supported self-management.


 

 

Introduction

Self-management of long-term health conditions is an important concept within healthcare, resulting in extensive global research (Hale, Oosman & Stewart et al. 2022a; Taylor et al. 2014). Touted as an important strategy to reduce the burden of long-term health conditions, self-management has been demonstrated to improve health-related quality of life (Taylor et al. 2014). This state-of-the-art review interrogates and challenges the concept of self-management within healthcare. The review begins by questioning the different terminologies used and the neoliberal individualism perspective in which health self-management is applied. It then focuses on the conceptualisation of supported self-management in an African context. Finally, the review considers why this topic is of relevance to physiotherapy.

 

Challenging the concept of 'self-management'

Although the idea of caring for oneself and, or family to maintain health or treat illness is evident throughout history, several terms, such as self-care and self-management, have been used in the literature, sometimes interchangeably, lacking consensus around their meaning and use (Jones et al. 2011). This is now complicated by the recent addition of terms like self-management support and supported self-management. 'Self-management' in health is defined as 'an individual's ability to manage the symptoms, treatment, physical and psychological consequences, and lifestyle changes inherent in living with a chronic condition' (Barlow et al. 2002:178). This involves individuals accessing resources or attending self-management programmes to learn about their condition and acquire skills to manage their health (Taylor et al. 2014).

Self-management is usually packaged in a programme and can be delivered through one-on-one or group interventions in a primary care setting or, more broadly, through population-wide approaches (Jones 2013; Pearson et al. 2007). These programmes generally have two overarching aims: firstly, reduction in the use of healthcare services (emergency and hospital with linked reduction of cost to the healthcare system), and secondly, improvement of health outcomes for people living with long-term conditions (Pearson et al. 2007). Within such programmes, the aim is to influence and positively change patient behaviour. The programme content can vary and may include patient education, coaching, goal setting, skill development (e.g. self-monitoring, self-determination, and problem-solving [De Silva 2011]), planning, and emotional and problem-solving strategy development (Pearson et al. 2007).

Whilst seemingly an attractive strategy for individuals to learn to manage their long-term health, there is an underlying assumption by healthcare providers and health systems that people have the 'agency or free will and self-efficacy to make daily decisions that would benefit their health' whilst 'overlooking the powerful effect of social context' and that 'not everyone is in a socio-economic position to prioritise health and be supported to be in control of their health' (Francis, Carryer & Wilkinson 2018:2). The global advancement in self-management is linked to the increasing cost of healthcare, the reduction in access to healthcare providers and services (including rehabilitation), the impact of long-term conditions on the health of populations, and the associated costs as well as the improvements in quality of life when patients become involved in their healthcare (Mitra et al. 2017). Improvements in quality of life often depend on improving patients' abilities to manage their physical and psychological health (Pearson et al. 2007). Thus, self-management has become an important determinant of public policy and public spending (Furler, Harris & Rogers 2011) and is underpinned by a neoliberal discourse of personal or individualistic responsibility. 'Self-management [is now] a "policy relevant" construct, clearly within the remit of the health system and [therefore seen as] one of the daily tasks of patients and health providers in their encounters' and may drive further inequities in healthcare (Furler et al. 2011:3).

We argue that self-management in the context of living with a long-term health condition or disability goes beyond the individual, and impacts physically, mentally, emotionally and economically on individuals and their families, community, and the wider society (Mitra et al. 2017). Self-managing health in this context is complex and can be difficult for most individuals but more so for individuals with cognitive impairments such as intellectual disabilities (Hale et al. 2011), mental health issues (Blixen et al. 2016), or those living with multiple and complex long-term health conditions (Francis et al. 2018). Self-management programmes can facilitate people to learn to manage their long-term health condition, but such programmes are frequently inaccessible for many people, arguably for those needing the most support, and often have high attrition rates (De Silva 2011; Furler et al. 2011; Jones 2013). Reviews have identified multiple and complex reasons for inaccessibility. These include geographical, disability, cultural, ethnicity, language and communication, cognition, poverty, housing, income, and employment insecurity, multimorbidity, and potentially living in low to middle-income countries (De Silva 2011; Hale et al. 2022a; Hearn et al. 2019). Critiques of such programmes indicate that health self-management presumes high health literacy and social capital (Ould Brahim 2019; Pickett & Wilkinson 2015).

Self-management support has been conceptualised in two different ways: (1) provision of education, techniques and tools that facilitate healthy decision-making and (2) a person-centred approach enabling a collaborative (reciprocal) relationship that supports the person as they develop the skills needed to self-manage and their self-efficacy to use them, thereby developing over time the person's confidence to manage their health (Bodenheimer, MacGregor & Shafiri 2005; De Longh et al. 2015; De Silva 2011; Jones 2013; Wyatt & Ampadu 2022). Delivering supported self-management in a collaborative, responsive, and flexible manner may enable a more individualised approach to meet the needs of those previously excluded (Jones 2013). Whilst the literature generally refers to the umbrella term of self-management support (De Longh et al. 2015; Jones, Pöstges & Brimicombe 2016; Taylor et al. 2014), based on that used by De Silva (2011), we have adopted a more differentiating approach to terminology. We suggest that providing the tools or interventions to assist someone in self-managing could be considered 'self-management support' and that the responsive and flexible individualistic approach that requires a collaborative partnership be termed 'supported self-management.' We further contend that 'supported self-management' may be a possible path to support all people in learning to manage their long-term health condition (Rhoda, Smith & Joseph 2017). Four principles are suggested to underpin 'supported self-management', namely:

(1) affording people dignity, compassion and respect; (2) offering coordinated care, support or treatment; (3) offering personalised care, support or treatment; and (4) supporting patients to recognise and develop their strengths and abilities to enable them to live independent and fulfilling lives. (De Longh et al. 2015:6)

From our narrative so far, we have contended that the healthcare phenomenon of 'self-management' could be reconceptualised as 'supported self-management' to enable equitable healthcare access to all living with long-term health conditions. But is this enough? Many would contend that the philosophy of focusing on the 'self' is problematic in and of itself (Ould Brahim 2019). Wilson, Wilkinson and Tikao (2022) argue that:

[S]elf-management concepts are strongly driven by ideas of personal responsibility and an expectation that a person will learn to manage themselves. This is a cultural artefact, a way of thinking that comes from white, Western, neoliberal countries. (p. 15)

Self-management of long-term health conditions is ideologically desirable from the perspective of neoliberal political and moral economies, which emphasise individuals' responsibilities regarding their well-being and healthcare (Ould Brahim 2019; Pickett & Wilkinson 2015). Yet the concept of 'self' varies across cultures. In cultures that emphasise individualism, people can be considered autonomous (Realo 2003) and thus arguably able to or 'expected to' manage their health. Conversely, with collectivism, where the groups people belong to, such as family and community, are highly valued, the 'self' becomes less prominent (Realo 2003) and thereby incongruent with the concept of 'self-management' of health. Such debates are evolving in nations where the ideologies of collectivism stand out (Basurrah, Al-Haj Baddar & Di Blasi 2022; Wilson et al. 2022). So, what of the African viewpoint? Have the understandings and concepts of supported self-management evolved to encompass an African perspective, and if so, how?

 

Evolvement of self-management in the African continent

We undertook a state-of-the-art review addressing why knowledge about supported self-management has evolved in the way it has on the African continent. Underpinning a state-of-the-art review is an understanding that 'knowledge is shaped by individuals and their community and is a synthesis that will change over time' (Barry, Merkebu & Varpio 2022:285). Data are collected about a phenomenon and analysed to deconstruct how and why an understanding of the phenomenon has evolved, leading to recommendations for new directions for research (Barry et al. 2022) and clinical practice. A subjective summary presents the argument for 'where we are now how we got here where we could go next' (Barry et al. 2022). Guided by these questions, a search via Google Scholar was undertaken for any recent article (2016-2023) exploring patients' and healthcare providers' understanding of supported self-management in Africa (search terms provided in Table 1-A1, Appendix 1). Authors also retrieved relevant articles based on their knowledge of the subject area. Articles were read for relevance, and relevant data were tabulated about the author, year, setting, population, long-term health condition, aim, method, results, recommendations or clinical relevance and definition of self-management, self-management support or supported self-management.

A total of 16 studies, 11 primary research studies, and 5 reviews (2016-2023) are included in our review, details of which are provided in Table 2-A1, Appendix 1. Studies were primarily undertaken in Malawi, Ethiopia, Kenya, South Africa, Uganda and other sub-Saharan African countries with healthcare workers (~n = 177) and people living with long-term health conditions (~n = 16 115). Long-term health conditions included Type 2 diabetes (T2D), musculoskeletal pain, chronic low back pain, hypertension, a mix of other non-communicable conditions (e.g. asthma, epilepsy, stroke, and cancer) and communicable diseases (e.g. HIV and tuberculosis). Definitions for self-management, self-management support or supported self-management in these articles were drawn from Western authors (see De Silva 2011), spanning development, research and understanding of the concepts in Western thinking (1999-2014). From the included literature, self-management support currently appears to be driven mainly by a lack of availability of healthcare workers and resources and healthcare accessibility issues. However, healthcare practitioners must acknowledge that patients come with the ability to make their own healthcare decisions. Therefore, this must always be central to any supported self-care strategies that are developed. The clinical relevance of recommendations from included studies suggests that services for people with long-term health conditions in African countries require change at interpersonal, organisational and structural, as well as conceptual levels, with many authors recommending future locally derived solutions be found. Further in the text, we present summarised data extracted from the included studies under the headings of 'interpersonal', 'organisational and structural', and 'conceptual'.

Interpersonal

The included literature suggested that relationships and communication between people were key for facilitating the provision of supported self-management. Relationship development includes improving communication between patients and healthcare providers and deepening the understanding and acknowledgement of peoples' situations and wider contexts by healthcare providers. Being patient- or person-centred is identified as facilitating supported self-management (Chala et al. 2022; Diener 2021). However, healthcare providers' attitudes towards and communication styles with patients impact relationships (Angwenyi et al. 2019; Dube et al. 2017; Masupe et al. 2022) with 'victim blaming' noted as being unhelpful with people not being able to 'self-manage by following a set of instructions. . [A person's self-management] needs to be based on choice and requires the ability to make informed, healthy decisions' (Iregbu & Iregbu 2016:3). Understanding of one's own beliefs (i.e. the healthcare provider) about health are suggested to facilitate interpersonal relationship development, with development of communication skills (listening, reflecting, i.e. therapeutic alliance) highlighted as a priority (Diener 2021).

Positive patient-provider (patient- or person-centred) interactions and communication provide an atmosphere whereby patients can engage with the healthcare provider (Angwenyi et al. 2019). Such positive interactions are also suggested to be built on understanding the patient and their wider situation (Diener 2021; Dube et al. 2017; Gumede et al. 2022; Masupe et al. 2022). An acknowledgement by healthcare providers is needed of peoples' capability to take care of themselves and their family, despite the lack of resources available to them (insufficient healthcare coverage, lack of consistency of access to medications, food, shelter and income) (Angwenyi et al. 2018, 2019; Dube et al. 2017; Masupe et al. 2022). A lack of explanation by healthcare providers is noted to impact engagement with healthcare providers' advice (Angwenyi et al. 2019), with a disconnect in understanding the impact of wider contextual factors by 'facility-based' healthcare providers (Masupe et al. 2022). This includes patients' traditional health beliefs and needs to be incorporated into supported self-management programmes to ensure their appropriateness and viability.

Organisational and structural

The need to develop healthcare providers' understanding of and competency in supporting patient self-management endeavours is evident in the included studies (Angwenyi et al. 2019; Chala et al. 2022; Diener 2021). As the:

[B]urden of disability [was high] and health resources are limited, [physical] therapists have a collective responsibility to educate patients, communities, funders, and policymakers on safe and effective self-management of musculoskeletal pain in South Africa. (Diener 2021:6)

Yet, knowledge in, for example, diabetes care, is 'not translating into [nurses] self-efficacy and self-management support in practice' (Landu & Crowley 2023:e1).

Health system and service provision challenges exist (Dube et al. 2017), with differences observed in access to the level of care provided to people with, for example, HIV (in primary care) versus participants with non-communicable diseases (NCD) (Angwenyi et al. 2019). Self-management of T2D is affected by poverty, different cultural and religious beliefs, family dynamics and reduced knowledge about self-management practices (Angwenyi et al. 2019). Most studies focus on the medical management of T2D with a compliance focus. None focus on partnership or collaboration between the patient and healthcare provider or explore experiences of people living with T2D daily (Iregbu & Iregbu 2016). Decentralising health services to a primary care level for NCD services in Malawi is suggested to encourage healthcare seeking and decrease reliance on traditional medicine (Angwenyi et al. 2018).

However, primary care is often hampered by inadequate community services and staff shortages, so a recommended solution is to have dedicated community-based multidisciplinary healthcare teams with well-trained healthcare providers (Landu & Crowley 2023; Masupe et al. 2022). However, there is a need to enhance self-management support training for and increase the competence of healthcare providers (Chala et al. 2022; Landu & Crowley 2023). One innovative strategy employed is to train community health workers (CHW) in self-management skills for long-term health conditions to enable them to self-manage their health and those they support in the communities. In-depth interviews found that CHWs feel empowered to manage their health, driven by their wish to help others. Having skills to support their health and confidence in making decisions is essential. These healthcare workers are frequently caught in dilemmas between their comprehensive knowledge of their community and respecting the knowledge they are privileged with from the people they support. Examples of this are disclosing abusive relationships or financial hardships. This predicament impacts CHWs' effectiveness in delivering community education, informal counselling, social support and advocacy (Majee et al. 2020).

In Malawi, people living with long-term health conditions are offered patient education and counselling in clinic settings and HIV programmes, with support from peer experts and support groups. Lay volunteers from community/faith-based organisations also provide various community-based initiatives, including home nursing, health promotion, adherence counselling and psychosocial support. A qualitative study explored the perceptions of rural people living with a wide range of long-term health conditions regarding the outcomes and benefits of such programmes (Angwenyi et al. 2019). Barriers to the uptake of these programmes include their condition-based nature, which thus excludes many conditions, such as lack of information about membership, cost, physical distance from the group, privacy issues and being too busy. Patient and provider interactions are limited by structural barriers of crowded rooms, lack of privacy, high workload, long queues impeding extensive discussions, lack of staff, limited provision of regular group-based sessions, and staff having limited training and knowledge (Angwenyi et al. 2019). Despite these barriers, participants interviewed had developed skills of self-management such as self-regulation and vicarious learning from others, but their self-management ability was limited by low socio-economic conditions and poor access to health resources, resulting in a heavy reliance on family support. Further, there appeared to be an inequity of resources, with those living with HIV able to access more primary health care support than those living with NCD and those with both HIV and NCD. Angwenyi et al. (2019) conclude that peer-patient and support groups should be increased and that integrated services should be delivered at a primary care level for all those living with long-term health conditions.

A Cape Town, South Africa study set out to develop a couples-focused intervention to improve adults' self-management of T2D ('Diabetes Together') based on the premise that an approach involving a partner motivates and supports sustained behaviour change by the person with diabetes. Using published studies and qualitative interviews with couples, six guiding principles were established, which were (1) providing information and advice on diabetes, (2) helping couples talk about diabetes together, (3) setting goals together, (4) sharing fears and coping with hard times, (5) acknowledging how gender plays a role in diabetes care, and (6) remembering that all couples are different and supporting couples to make choices that fit their lives. This approach must now be piloted (Smith et al. 2023).

Masupe et al. (2022) qualitatively explored barriers and potential solutions to the provision of self-management support provided to people living with T2D or hypertension in a peri-urban township in Cape Town, South Africa, interviewing both the healthcare providers and the recipients of healthcare. Two main challenges reported are patient-based, namely 'poor patient self-control towards lifestyle modification' and 'post-diagnosis grief-reactions by patients' (Masupe et al. 2022:1). However, poor communication and a disconnect between facility-based services and patients and their families are acknowledged as well as inadequate community care services. Patient-driven solutions include having dedicated multidisciplinary diabetes and counselling services, strengthened family support, patient buddies, patient-led community projects and advocacy (Masupe et al. 2022).

Many interventions to enhance self-management of conditions such as T2D have been found efficacious, but successfully implementing them into practice is challenging, often influenced by national societal and policy contexts. Van Olmen et al. (2022) evaluated the implementation of the 'Self-Management and Reciprocal learning for Type 2 Diabetes' (SMART2D) in three countries - rural Uganda, semi-urban South Africa and semi-urban Sweden. Implementing this intervention based on the self-determination theory highlights the contextual impact on delivery, with each country focusing on different aspects of delivery (Van Olmen et al. 2022).

Conceptual

'Conceptual' related to views or understandings of the term 'self-management' by authors reporting interpretation of the term in an African context. Self-management is not seen as a panacea for all long-term health conditions (Dube et al. 2017), with optimal self-management needing to be viewed in a larger context (i.e. taking into account social and cultural factors) (Gumede et al. 2022). The Western-based self-management model does not describe all self-care activities undertaken by those living in African countries (Stephani, Opoku & Beran 2018). For some countries, the concept of self-management is considered new and complex to translate (e.g. into Amharic), with overlapping concepts with self-care and self-treatment. There are diverse views of self-management support strategies (Chala et al. 2022). Other authors suggest that opportunities exist to develop and implement contextually adapted, structured self-management support training for healthcare providers (Dube et al. 2017). These should focus on the person, family and community's ability to activate resources, emphasising living daily with the disease or diseases rather than just on medical management (Iregbu & Iregbu 2016). Other terms used in the West, such as 'patient empowerment', require reconceptualisation, especially in resource-constrained public health systems (Angwenyi et al. 2019), such as in African countries. It is noted that people with T2D accept poor health as inevitable and are unaware of the significant health improvements that could be made (Smith et al. 2023). The use of the culturally based mindset of Ubuntu or interdependence, openness, and togetherness is suggested as providing a fertile ground for the success of self-management training and CHW programmes (Majee et al. 2020).

 

Discussion

The increasing numbers of people worldwide living with long-term health conditions are placing a growing burden not only on patients and their families but also on the broader community and the health system. The concepts of supported self-management, self-management and self-management support are reasonable recommended ways of dealing with this healthcare crisis but have developed from Western understandings of health and philosophies. The findings from our state-of-the-art review suggest that the concept of self-management has evolved in Africa, as in other parts of the non-Western world, in that what was developed within a Western paradigm was then superimposed into the African context. Like elsewhere in the world, this imported approach has met challenges. These challenges include the definitions of self-management and supported self-management being drawn from Western authors and thus Western conceptual thinking, then implemented because of a lack of available healthcare workers and resources or accessible healthcare. These findings unfortunately support Airhihenbuwa and de Wit Webster's (2004) much earlier assertion that self-management is a:

Western cultural logic being masqueraded as a universal truth. There is and remains a reliance on intervention strategies developed for Western countries to 'solve' health problems in African countries. (p. 6)

Further challenges include concepts such as patient empowerment, which need examination, especially in resource-constrained public health systems. Behaviour change interventions, for example, motivational interviewing, self-determination theory, enhancing competence in making lifestyle choices, and mindfulness, were likewise imported. These interventions were found to be difficult to implement because of local barriers, such as stigma, entitlement mentality, inadequate community services and staff shortages (Angwenyi et al. 2018; Masupe et al. 2022; Smith et al. 2023; Van Olmen et al. 2022).

Our review found no literature about African traditional medicine or how concepts from this could be included in supported self-management strategies. In South Africa, the Traditional Healthcare Practitioner Act was implemented in 2007. However, traditional African healers managed patients with health issues long before Western medicine was introduced to the continent. It is possible that indigenous self-management practices and knowledge were taught to people with long-term conditions that have yet to be acknowledged and reported.

Their approach to healthcare is holistic and not only links cultural and religious beliefs but also involves the psychological, spiritual and social aspects of individuals, families and communities (Truter 2007). Thus, whilst not explicitly stated as supported self-management, many patients in Africa come to healthcare providers with this holistic and all-encompassing understanding and expectation of healthcare. This perspective challenges healthcare providers to ensure that any self-management strategies considered are underpinned by this understanding. If not, the desired behaviour changes may be hard to attain and sustain and, more than likely, be unsuccessful (Airhihenbuwa & de Wit Webster 2004).

When considering the need for African solutions to the long-term management of health conditions, healthcare workers could partner with or at least consider what traditional healers offer patients. Other strategies should include measures to improve patients' quality of life and the development of self-efficacy to ensure patients' confidence in managing their own health. Many studies conclude the need for African solutions to manage long-term health conditions, for example, co-created solutions or healthcare workers building their skills in interpersonal relationship development and person-centred care via a strengths-based approach. African solutions could draw on traditional African health strategies to help patients manage their health goals and develop self-efficacy, thus mastering their health care strategies. They could also draw on the African concept of Ubuntu. The term Ubuntu is understood in many African societies; however, many definitions of Ubuntu are often contradictory, with no universally accepted definition (Murithi 2009). Yet, two fundamental aspects of (1) the importance of relationships between people and (2) how these relationships are carried out (undertaken, shown, conducted, or effected), are generally accepted as encapsulating the 'spirit' of Ubuntu (Nolte & Downing 2019).

State-of-the-art reviews report the current state and knowledge held of the phenomenon being reported, and then make recommendations for new directions. Seemingly in Africa, imported concepts such as supported self-management and self-management could be considered from the limited literature found and reviewed. However, local solutions drawn from those used by traditional health care providers in deciding what goals of health management patients wish to develop and how they and their families need to solve problems to develop appropriate levels of self-efficacy relating to the health condition need to be considered when developing self-care programmes. An understanding of philosophies such as Ubuntu is necessary to enable those living with long-term conditions to live healthily and well. If a concept is foreign and not understandable, buy-in and the desired behaviour changes will be hard to attain and sustain by both patients and healthcare professionals, and will thus be unsuccessful. So, local researchers exploring and identifying local knowledge would be the main recommended direction from this review.

 

Physiotherapy and supported self-management

One last objective requires addressing - what relevance does this have for physiotherapists? Physiotherapists are crucial members of the interprofessional team required to support people living with long-term health conditions; they help to build the skills and confidence for people to self-manage their health and well-being, especially their self-efficacy to manage pain and participate long term in physical activity (Diener 2021; Hale et al. 2022b; Jones et al. 2016). Increasing physical activity is an integral component of managing all long-term conditions, whether it is T2D, persistent pain, stroke, mental health impairments, asthma or HIV (Reid et al. 2022). Whilst physiotherapists have evidence-based 'tools' that can be used to help people manage pain, engage in physical activity, and enhance ability and participation, physiotherapists should think beyond the short-term and consider how they can empower people to have agency over their health (Hartley 2019). Physiotherapists, therefore, should, in partnership, also support people in building their self-management skills and confidence to use them, empowering them to control their own health journeys (Jones et al. 2016). People with long-term conditions need ongoing support to live life well, especially those living precariously, and not just education with its current pejorative co-existing concepts of adherence and compliance (Bright et al. 2015; Hale et al. 2022b). Any interventions or programmes developed need to be co-designed with those 'to whom it matters' so that the result is contextually appropriate and acceptable to those participating and something of relevance and importance in an African context.

 

Conclusion

Our state-of-the-art review explored the conceptualisation and evolution of supported self-management in an African context and discussed the relevance of the topic to physiotherapists. From the limited studies found and reviewed, it seems that imported concepts such as supported self-management and self-management could be considered but that local solutions drawn from traditional understandings of health and the philosophy of Ubuntu are necessary to enable those living with long-term conditions to live healthily and well. Foreign concepts are not always directly 'transferrable' nor understandable. Therefore, buy-in and the desired behaviour changes will be hard to attain and sustain and, more than likely, unsuccessful if the cultural understanding of the health of patients does not underpin the development of self-management interventions. Physiotherapists are crucial members of the interprofessional team. They can support people living with long-term health conditions to build their skills and confidence to self-manage their health and well-being, especially their self-efficacy to manage pain and participate, long-term, in physical activity. However, the authors of this review would recommend that local researchers explore and identify local knowledge and facilitate the use of co-design in the development of local solutions.

 

Acknowledgements

Competing interests

The authors declare that they have no financial or personal relationships that may have inappropriately influenced them in writing this article.

Authors' contributions

L.H., A.W., S.P. and A.S. were involved in the conceptualisation, writing, and editing of this article.

Ethical considerations

This article followed all ethical standards for research without direct contact with human or animal subjects.

Funding information

This research received no specific grant from any funding agency in the public, commercial or not-for-profit sectors.

Data availability

Data sharing is not applicable to this article, as no new data were created or analysed in this study.

Disclaimer

The views and opinions expressed in this article are those of the authors and are the product of professional research. It does not necessarily reflect the official policy or position of any affiliated institution, funder, agency, or that of the publisher. The authors are responsible for this article's results, findings, and content.

 

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Correspondence:
Aimee Stewart
aimee.stewart@wits.ac.za

Received: 28 Aug. 2023
Accepted: 14 Feb. 2024
Published: 30 Apr. 2024

 

 

Appendix 1

 


Table 1-A1 - Click to enlarge

 

 


Table 1-A2 - Click to enlarge

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